Elijah's feeding issues have still not been figured out. Last night we had a really long talk with one of the doctors about it. Our primary dr has been on vacation and we finally realized that none of the drs have been stepping up to take charge of Eli's care, so we requested a meeting with the dr who was on call.
We went over the past 10 or so days in regards to Eli's green/yellow spit-up and residuals, his inability to take any amount of formula/breastmilk regardless of what kind, and the various x-rays that don't seem to be showing anything. We basically wanted to know what was next, what they plan to do, what they think it might be, etc.
So, there are a few possibilities -his digestive system is simply immature and will take time to be able to work (most likely), he may have something like NEC (http://kidshealth.org/parent/medical/digestive/nec.html) and he is just a really strong boy and isn't showing us the signs yet (less likely), or he could possibly have Hirschsprung's disease (http://en.wikipedia.org/wiki/Hirschsprung%27s_disease) which is rare, but seems to fit his issues. Right now the plan is that they are doing a barium enema today to check for Hirschsprung's. I guess since Greg is of Ashkenazi decent there is a higher risk. If it is Hirschsprung's it is likely that Hazel might have some kind of form of it as well.
If the tests today come back normal they are going to try another form of formula that is easier to digest. If that doesn't work, they will reassess. If he does have Hirschsprung's there would be a surgical consult and he may need surgery, soon.
Please keep him in your thoughts today. I hope the tests come back normal, but at the same time I just want them to figure out what is wrong:( We've been at the NICU a lot this week just trying to figure things out. I have been forgetting to eat and have been ignoring so many phone calls. Sorry to those of you who have been calling.
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6 comments:
Huge (((((hugs))))) I'm so glad you requested the talk with the dr. And I really hope they can figure out what's going on with your little guy. Many prayers going out to you and your family.
Praying for your little boy. I hope some clarity comes to the picture soon and that he starts eating the easier to digest formula.
I'll be praying for your sweet little man and that they get it figured out ASAP and that it's nothing serious. ((HUGS))
yuck. i so just want this part to be over all ready!! i hope that the nicu teams are treating you well. i know it's all stressful.
i hope you get some answers soon! i'm thinking lots about all of you!
xoox
Thinking of you all, and hoping you have some answers soon. take care...
I'm so sorry! Praying for little Eli and for Hazel as well.
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