E's appointment at the Eye Clinic was yesterday, and the news is not so great.
The diagnosis is is Congenital Infantile Esotropia (eye misalignment) with Amblyopia (reduced vision). So basically E's brain is not sending the correct info to his right eye, causing it to turn in, which causes the eye to not work as hard, which causes reduced vision.
We are going to start patching which will help regain the use of the eye, but for the misalignment they say surgery is our only option. They already scheduled it for October 14th. The actual surgery is fairly 'easy', they remove the eye from the socket (ewww!) and cut the muscle that the brain is incorrectly telling to move. Then they reattach the muscle in a spot that would make the eye look forward.
What really sucks is that the dr said in many cases one surgery does not fully fix the problem. Often they need to go back and adjust the positioning of the muscle.
So, overall not so good news. I know it could be worse, but lately I feel like I have to take that perspective with a lot of things, and why can't things just be EASY?
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Our journey through infertility, to pregnancy, with a few bumps along the way.
About Me
- Andrea
- Milwaukee, Wisconsin, United States
- After years of struggling with infertility we are finally parents to twins thanks to IVF#2! Learning through the difficult time of infertility, a multiples pregnancy, hospital bedrest, and a NICU stay that life is life, there is nothing you can do to control it. All you can do is try to make the best of it:)
Our Journey
- 10/05-Got married!
- 12/06-Began TTC
- 8/07-Diagnosed with Varicocele
- 10/07-Varicocelectomy
- 7/08-First RE appointment
- 9/, 10/, 12/08-IUI #1-3=BFNs
- 1/09 -IUI#4 =BFN
- 4/09 -IVF#1=BFN w/RE #2
- 6/22/09-IVF#2 =BFP!
- 1/15/10-Hazel and Elijah were born
Blog Archive
IF Success Stories
- Busted Babymaker
- Caroline-From Infertility to Baby
- Conceive This!
- Infertility Journey to Motherhood
- IVF on the Down Low
- Little Bluebirds Fly
- Make it Grand
- My Infertile World
- No swimmers in the tubes, no bun in the oven
- Not How I Planned
- Pieces of My Life
- Someday, Someway!
- Swimming Against the Tide
- There's a baby at the end of this, right?
Multiples
Infertility Blogs
Loss
Non-IF blogs I like
Money Spent on IF
- 2008-
- 7/23/08 -$323 RE office visit
- 7/23/08 -$727 cervical cultures
- 8/11/08 -$948 day 3 bloodwork
- 8/11/08 -$536 day 3 ultrasound
- 8/20/08 -$285 for IUI #1
- 9/5/08 -$194 Semen analysis and cryopreservation
- 9/08-9/09 -$150 semen storage fee
- 9/11/08 -$194 semen analysis
- 10/6/08 -pending $3,500 for HSG
- 10/11/08 -$285 for IUI #2
- 12/1/08 -$285 for IUI #3
- 12/27/08 -$285 for IUI #4
- 2009-
- 1/24/09-$248 RE office visit
- 1/28/09 -$412 semen analysis and bloodwork
- 1/30/09 -$542 mock-ET and bloodwork
- 2/6/09 -$3,966 for IVF & ER anesthesia
- 2/10/09 -$1,819.05 for IVF Meds
- 3/25/09 -$1,290 freezing embryos
- 4/2/09 -$293 beta testing
- 6/1/09 -$3,996 for IVF #2
Acronyms
- AF = Aunt Flow (menstruation)
- Beta =Beta blood test, tests for pregnancy hormone
- BFN = Big Fat Negative (on HPT)
- BFP = Big Fat Positive (i.e. PREGNANT!)
- DH = Dear Husband. Even when he's not being particularly dear
- ER = Egg retrieval
- ET = Embryo transfer
- FET=Frozen Embryo Cycle
- HPT = Home Pregnancy Test
- ICSI = Intro Cytoplasmic Sperm Injection
- IF = Infertility
- IL = In-laws
- IUI = Intrauterine Insemination
- IVF = In Vitro Fertilization
- LO = Little Ones (babies)
- MFI = Male Factor Infertility
- MoM = Mother of Multiples
- O = Ovulate
- OPK = Ovulation Predictor Kit (tells when you O)
- Pg = pregnant, pregnancy
- PIO = Progesterone in Oil shots
- POAS = Pee on a Stick (take HPT)
- RE = Reproductive Endocrinologist
- SA = Semen Analysis
- SIL = Sister-in-Law
- Stims = Stimulation hormone shots
- TI = Timed Intercourse
- TTC = Trying to Conceive
- TTTC = Trouble Trying to Conceive
- WTF=What the fuck? -why didn't this work
6 comments:
My sister had to patch when she was young, but no surgery. That eye still has terrible vision, but she can see...at least he is ok overall. I know it's hard...HUGS
I am sorry to hear about his eye.
Sounds scary to have the op, but good that they are able to do this and get the eye forward. Hope all goes well with it.
x
prayers...
I'm so sorry for all you and little E are going through. But I'm so glad there's a procedure that can help him see right for the rest of his life! SEnding prayers and strength your way!
I changed my url, sweetie, wanted to let you know! http://gvandmonkey.blogspot.com
I came across your blog through others, I noticed that you are speaking of Esotropia. I can speak from experience with my son having surgery at 18 months, and another at the age of 5 because of esotropia and amblyopia, that the surgery is not as bad as the doctor is sounding it out to be. I was a nervous wreck knowing that my baby was going under the knife, but also knowing that he needed the surgery too. The patching can be difficult, but there is so many things that you can do for this as well such as adding stickers to the patches, or having others wear "patches" too so that it becomes fun. After my son had his surgery, all was taken care of with the esotropia and he was no longer at risk for it. Best of wises!
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